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Session 2: Ethical Considerations in Neonatal and Rare Disease Clinical Trials



    Introductory Remarks for Panel Discussions and Moderator
    Dalia Feltman, MD, MA
    OPT/OCMO/OC, FDA

    Panel A: Weighing benefits and risks when evidence is limited

    Panelists:

    Alison Bateman-House PhD, MPH, MA
    NYU Grossman School of Medicine

    Robert Nelson, MD, PhD
    Johnson and Johnson

    Allyson Berent, DVM, DACVIM
    The Foundation for Angelman Syndrome Therapeutics (FAST)

    Elliott Mark Weiss, MD, MSME
    Seattle Children’s Hospital

    Matthew A. Rysavy, MD, PhD
    McGovern Medical School at UTHealth Houston

    Ashley O’Neil, CRNP
    It’s a NICU World

    Panel B: Study design considerations

    Panelists:

    Alison Bateman-House PhD, MPH, MA
    NYU Grossman School of Medicine

    Robert Nelson, MD, PhD
    Johnson and Johnson

    Lindsey Wahlstrom, MPH, CPH
    Rona’s FUN LAB

    Elliott Mark Weiss, MD, MSME
    Seattle Children’s Hospital

    Matthew A. Rysavy, MD, PhD
    McGovern Medical School at UTHealth Houston

    Jennifer Degl, MS
    NICU Parent Network

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